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While both babies were on ventilators, Jaylin needed extra help breathing from a chest tube. They stayed in the NICU for 72 days and experienced many ups and downs, but were able to come home four weeks shy of their original due date. Today, Jayda and Jaylin continue to receive breathing treatments for chronic lung disease and have had tubes placed in their ears. Their smiles continue to bring joy to those around them. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1761144094416-IRU0XUE87EF7EPRA1B0F/2025%2BLorenzo%2B.jpg Champion Kids - Lorenzo's Story Lorenzo was born at 23 weeks and weighed just one pound. In the first few months of his life, he had undergone multiple blood transfusions, needle sticks, ventilator changes, and surgeries. He spent six months in the neonatal intensive care unit (NICU) at UF Health Jacksonville and was then transferred to Wolfson Children’s Hospital, where he spent several more months before going home for the first time. His family expects Lorenzo to have to undergo additional surgeries to repair his trachea. Today, Lorenzo is breathing independently and is excelling with his therapies. He has even learned how to communicate using American Sign Language. Lorenzo’s family continues to celebrate his accomplishments. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1760543458579-6RSOL9K51DV3W8M75G41/2025_Joe+Joe.jpg Champion Kids - Joe Joe's Story At four days old, Joe Joe was diagnosed with transient myeloproliferative disorder (TMD), a blood disorder that is common among Down Syndrome children. Four days after his second birthday, Joe Joe’s legs and arms stopped working. He was diagnosed with acute myelogenous leukemia (AML) and immediately started an aggressive form of chemotherapy, which knocked out his immune system. After 72 hours of chemotherapy, his appendix ruptured and he was rushed into emergency surgery, which was a dangerous procedure with his already-compromised immune system. At 21-years-old, he received his 70th surgery. Joe Joe is now thriving with an infectious love for life. He spreads happiness and joy to everyone he meets. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1761143025120-C0434Q2QJ8YPW981Q7MK/1.png Champion Kids - McKenna's Story At 1 day old, McKenna began to aspirate liquid into her lungs while being fed by a nurse. She was rushed to the neonatal intensive care unit, where an ultrasound revealed that she was born with two rare and potentially life-threatening conditions: tracheoesophageal fistula and esophageal atresia. McKenna’s esophagus did not connect to her stomach and there was a hole between her esophagus and trachea, which meant she couldn’t swallow food or liquid normally and she was at risk for respiratory issues. At just 5 days old she had her first surgery to begin correcting these congenital anomalies. McKenna was later diagnosed with a heart condition. Now 8 years old, she has undergone more than 41 surgeries. McKenna has come a long way and is now able to eat solid foods thanks to the care she has received at Wolfson Children’s Hospital. Due to her complex medical challenges, she has regular visits with 13 specialists. Today McKenna, who also has Down syndrome, loves to play ice hockey, sled hockey, and competes in all-star cheerleading. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1709760043107-KUBAGUO2Z08OZA7DP5CI/Celeste+%282%29.jpg Champion Kids - Celeste's Story In 2012, Celeste was born unresponsive and not breathing. After being resuscitated, she was rushed to UF Health Jacksonville where she was treated with a Criticool-Cooling Control Unit, a machine that was purchased with CMN Hospital funds earlier that year. The cooling cap limited and healed any brain damage that may have occurred during her birth. For some time following her resuscitation, Celeste continued to receive expert care from doctors after being discharged from the hospital. Since then, she has also been diagnosed with Cerebral Palsy, specifically muscle weakness and spasms. Today, she is a happy-go-lucky kid who plays violin, does gymnastics and ballet, and doesn’t take a single day of her miracle life for granted. She fills every day with positive energy as she explores and discovers the world around her. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1709760066869-BXQIUFRJDDDZ9Q5EOJIZ/Nathaniel+Dancing+on+the+Blvd+2024.jpg Champion Kids - Nathaniel's Story Prior to being born, Nathaniel suffered from severe hydrocephalus, strokes, and possible heart conditions while in the womb. Nathaniel’s parents were told by several doctors that he wouldn’t have a life worth living. Thankfully, one doctor said that they wouldn’t know anything until he’s born, and the family took his advice. Born at 39 weeks, Nathaniel was the biggest baby in the neonatal intensive care unit (NICU) at Wolfson Children’s Hospital and had undergone multiple surgeries over the following years. His daily struggles include severe eating, colon, sight, and speech issues. He also has cerebral palsy, mitochondria disease, and tick disorder. Even with his sight, speech, and eating challenges, Nathaniel remains positive. Children’s Miracle Network Hospitals has helped provide many wonderful resources for Nathaniel and his family to make their daily lives easier to manage. Nathaniel loves LEGOs and traveling to see family in Germany. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1709760802024-24184YNP2JAWX3GRMZ2B/Sandra+2024.jpg Champion Kids - Sandra's Story At three months old, Sandra, who was born with congenital heart disease, was admitted to Wolfson Children’s Hospital with the label “failure to thrive.” She spent more than a week in the hospital for feeding tube placement and to receive assistance with gaining weight. Sandra also had surgery to repair a nasal blockage, but developed complications when she contracted a respiratory virus. She then spent 18 days in the cardiovascular intensive care unit after showing the beginning signs of heart failure. She had her first open-heart surgery at six months old, weighing just seven pounds. After months of recovery at home, her health began to flourish. Today, Sandra is a happy and thriving kid who amazes her family and friends with her unbreakable inner strength. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1743608225301-RGEJDTPC3EBAPI1QLUHS/Brian+2.jpg Champion Kids - Brian's Story When Brian was 6 months old, his pediatrician noticed that he had low muscle tone, the first sign of what would become a unique journey for him. At 10 months, Brian had his first seizure. By divine intervention, he and mom were already in the hospital parking lot. After his first seizure, Brian continued to have generalized tonic clinic seizures every week. The neurologist recommended a genetic panel for epilepsy, where they learned that Brian has a mutation in the KCNH5 gene responsible for coding potassium channel proteins. An exceedingly rare genetic mutation, KCNH5 research is very limited. As his family learned more about epilepsy and potential treatments, they also began to prepare for Brian’s journey. The neurologists were able to reduce Brian’s seizures from weekly to every 3 months; and then with more adjustments to treatment have been able to keep him seizure free for almost 3 years! While Brian also has autism and global developmental delays, he has made tremendous progress with his therapists at Wolfson Children’s Hospital. His family went from not knowing if he would walk or be verbal, to cruising around the house and using full phrases. Most importantly, Brian is happy and fulfilled. He loves the water, singing along to Bob Marley, and playing with his sister, Ariana. He gets true enjoyment out of life, appreciates the little things, and sees the best in everything. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1756322780164-1SS6MPDHTSHAJUIY146V/IMG_6456.jpeg Champion Kids - TJ's Story On November 1, 2022, TJ’s parents were rushed to Baptist Medical Center South for his delivery. TJ entered the world at 10:43 a.m., just within an hour of their arrival, and was a surprise birthday gift for his dad. Shortly after birth, a neonatologist recommended transferring TJ to Wolfson Children’s Hospital. He spent 92 days in the NICU, with his parents by his side the entire time. The first doctor to meet TJ offered his mother much needed words of encouragement and a comforting hug during a time of uncertainty. From there, a team of specialists (including cardiology, endocrinology, genetics, nephrology, and urology) came together to form a care plan. Through their efforts, TJ was diagnosed with the most common form of a lesser-known condition called Noonan Syndrome. He left Wolfson breathing on his own and eating by mouth. TJ now continues multiple therapies at Wolfson Children’s Hospital in Clay County. TJ loves music and has inspired all his therapists to sing in Spanish during his sessions. His therapy team has played a crucial role in his progress. TJ’s affectionate smile lights up the room, and he never forgets to blow kisses to the registration desk when he arrives. His mom and dad are incredibly thankful to Wolfson Children’s Hospital for giving them the opportunity to enjoy life with their son. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1756322852659-VUAH1JYNHOYJ7MYVNMP8/Zoe+2024+-+Updated.jpg Champion Kids - Zoe's Story Prior to birth, Zoe was diagnosed with a rare congenital heart defect, Double Outlet Right Ventricle: Tetralogy of Fallot type. As a tiny baby, only 11 days old, she had open heart surgery at Wolfson Children’s Hospital. Her second surgery was at two months old and her third surgery at four years old with a few catheter heart procedures in between the surgeries. All in all, the surgeons corrected seven heart defects. Zoe’s family anticipates another surgery in the future but in the meantime, Zoe is a vibrant and thriving girl who loves kittens, gymnastics, making music, and playing with her three brothers. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1758651302771-RIIJA1Q0MGJ0PQX2ZQ0M/Kayla+Babcock_Updated.jpg Champion Kids - Kayla's Story During Hurricane Matthew, Kayla was unexpectedly born with Pierre-Robin Sequence (PRS). She was transferred to Wolfson Children’s Hospital where the Cleft Team made her diagnosis. At just 3 weeks old, she had undergone her first life-changing surgery to increase her jaw size. By the time she was just 14 months old, Kayla had already undergone jaw distraction, hardware surgery, palate repair, and ear tube insertions. Today, she is happy and thriving. Kayla continues ongoing speech therapy and may require additional surgeries in the future, but has made great progress and is a true testimony of strength and resilience. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1760543610069-VD5ZNUM0X2J209ZYW3CK/2025%2BGage.jpg Champion Kids - Gage's Story Doctors refer to Gage as a miracle. Prior to being born, he was already breaking bones and was diagnosed with Osteogenesis Imperfecta (O.I.), more commonly known as “brittle bone disease.” Gage’s parents were told the hardest thing for a parent to hear – that he wouldn’t survive his diagnosis. Because there’s no cure for Gage’s condition, he had to undergo multiple surgeries and complex treatments at Wolfson Children’s Hospital. Children’s Miracle Network Hospitals has helped to provide Gage and his family with many wonderful resources to make their daily lives easier to manage. Gage is now a thriving teenager who continues to bring joy to everyone he meets with his genuine and contagious smile. https://images.squarespace-cdn.com/content/v1/55afc573e4b0db7fb272b044/1760543416231-X0MDOUA03SOZI783QOBZ/20240225_152312.jpg Champion Kids - Jaxson's Story Jaxson was born at 26 weeks at one pound at UF Health Jacksonville. Jaxson spent some time at UF Health's NICU and at 3 months old was diagnosed with NEC (necrotizing enterocolitis-a life-threatening illness) which is an inflammation of the intestine with a high mortality rate. He was immediately transferred to Wolfson Children’s Hospital. After overcoming NEC, it was determined that his lungs needed extra help. He then received his trach and gtube in August 2021. Before the trach was placed, Jaxson was very unstable and had many moments when he had to be resuscitated. After he received his trach, his health changed for the better, his organs were able to grow, and his body wasn't under so much stress. Jaxson was eventually discharged from Wolfson, a day before his 1-year birthday. Since being home Jaxson has continued to progress. He came off of the ventilator in May 2023, then started walking in June, and got his trach removed in February 2024. 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